Long time, lots of changes

Well it's been since December that I last posted. In terms of the cancer stuff, nothing much has happened. They see no growth, no shrinkage and are amazed. "Gee, seems like you have a very slow growth cancer". So they are doing nothing. First it was 6 weeks, then a CT scan. It again showed nothing. So they went 8 weeks. Had the CT scan last Thursday. My appointment to see what happened is this Thursday.

Such fun.
After the CT in January I met with my Oncologist with my sister. I asked her to come down from Minnesota to meet with my doc. I just felt it was going to be very important and I'd been realizing that I was intimidated by my Oncologist.

We worked for hours setting up questions and debating procedure and how to handle the meeting for best effect. Not to alienate the doc but to get some answers.

I don't think it went well. We did our best and the outcome sort of reassured both of us that she did, in fact, have our best interests at heart, but it still didn't really satisfy.

The upshot was we're going to wait another 8 weeks this time and then do another CT scan. She said (again) that they'd look again at my biopsy slides. Since this was an "incredibly slow growing" cancer, it made even her wonder.

Lots of in between stuff and I think the advocate at the center actually got it to happen, but they looked at the slides again and she consulted with a GI specialist who "thinks" it may be bile duct cancer.

Drama trauma

More about that later, cuz it's good to have a label, but bile duct cancer is just as bad, if not worse, than unknown.

I'm sick of it. Really really sick of it. I'm getting more pains in my middle and can't tell if it's gas or nothing or cancer growing and paining me. I hate this.

"This Thursday I will meet with the nurse praticitioner (my doc is out of the country) and find out the results of the CT scan I had last Thursday. I'm also going to tell her I want copies of all of my records. I want a second opinion and I want to send them to the Mayo Clinic. MN or AZ I don't know, but something has to happen here. I'm really frustrated and scared and tired of sitting on some bomb that I don't have a clue if it will blow or not.
enuf.