What with the holidays and all, it's been awhile again.
I've had an interesting turn of events!!!!
I went completely off the Nexavar in Nov because it just kept bugging me. A constant sorta nausea, yucky stomach, itching, mild hair loss and didn't feel like eating much but chicken noodle soup. In hindsight it wasn't "That" bad, but I'd been so lucky with side effects that it really bothered me to feel so tired and ill. Anyway, they decided that I'd taken "enough" Nexavar that the CT scan coming up in Dec should give some indication if it was working or not, and that we could decide what to do from that. I was really pushing to try something different like chemo-embolization or heat or freezing the tumors... or something!
Ok, so the results came back and AMAZINGLY it showed some shrinkage!!! Not a lot, and apparently here and there, but I have not EVER showed ANY shrinkage in 2 1/2 years!!!!!! I've asked to have a copy of the entire scan report mailed to me so I can really go over it myself, but it's not here yet.
So..............I'm back on Nexavar again.. Not happy with that, but HEY! so far it's the only thing that has done anything for me, so I'm approaching it with a bit of a tougher attitude. I got back on here and some other cancer sites and realized that as far as negative results from treatment, there's a LOT worse than I've experienced so far and with a little proof that it might DO something (after so long w/no signs) I am motivated.
Anyway, I'm only taking one pill a day (1/4 dose) for two weeks and then we'll meet and see how it's going. So far it's been one week and besides itching I'm doing ok. I can see now how the stomach problems go - I HAVE to have food in my stomach during the day - mini meals - or I get a sick feeling like a bombshell. That's not my meal eating style at all, but I've stocked up at work with soups and crackers, applesauce, etc. and that seems to help.
Went home to Minnesota for Christmas week and had a great time with my sister and brother and his family.
