Update
My 1993 Subaru died! Right in the middle of an intersection! Had to get a new(er) car, so I picked out a 2008 Pontiac Vibe. You can see from the pics that they sure look similar. The Vibe is very nice though, good gas mileage, safe car and kinda cute!
Early September 2009 I had my latest CT scan, after a summer off of all treatment.
Really hoped to continue THAT situation, but unfortunately they detected some growth.
I still don't know exactly how much, but bottom line they explained that there's been "enough" growth since day one to now feel I should go back on chemo. Pretty devastating news.
We're trying Nexavar - an oral chemo used for kidney cancer and recently approved for liver cancer. Since I "sorta' have liver cancer they think it might do some good. We'll see. After the 1st 2 weeks I was up to there with side effects. Couldn't eat much, felt lousy, pain in my sides, skin rash all over and my poor head! I couldn't even touch it with a comb or brush, yet it itched like crazy!
So they pulled me off it entirely for a week and now I'm back to taking 1/2 the regular dose. 2 pills/day vs 4/day. So far so good, but it's not even been a week yet.
Bottom line I guess is that I'm back in it again. I'm praying that everything stays as slow moving as it has been and that I don't get sick from the cancer itself.
We'll see! Best to all
Patti
5 comments:
Hi,
Just stumbled on your blog while looking for anything helpful on "cancer of unknown primary." It sounds like I have joined this club now too. So sorry to hear you are back on chemo but hope you are right that the cancer will continue to move slowly.
I have a known incurable non Hodgkin's lymphoma which has been treated and seems to be stable. But on my last 6 month scan bone mets were discovered. Appears they have no relation to the lymphoma and a bone biopsy states "poorly differentiated metastatic adenocarcinoma likely of mammary origin."
So far nothing has been found in the breasts and I have a new bone biopsy scheduled since I think they messed up the first one for any staining.
I'm wondering where might be a good place to get a second opinion on the pathology - current work is being done at Stong Hospital in Rochester, NY.
For Linda,
Sorry about your diagnosis.
You're close to Sloan Kettering.
M.D. Anderson also does remote pathology consultations. All your doc has to do is send the slides of the tissue there.
You can also ask your doctor to contact Dr. Richard Greco in Tennessee; he's the leading expert in the world on this kind of cancer.
Good luck! Hope this helps.
-Anonymous
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