Adenoid Cystic Carcinoma in the news
5 years ago
Sunday, March 29, 2009
Saturday, March 28, 2009
Vacation of a lifetime?
My sister and I are going on a river cruise! In two months come hell or high water (or low water?)
This is a river cruise along the Elbe with Viking River Cruises. It starts with 2 days in Berlin, a transfer the river with a stop in Posdam. Then Magdeburg, Dessau, Wittenberg, Torgau, Meissen & Dresden Germany. Then a float through "Saxon Switzerland" as they call it, with a stop at Bad Schandau. Then on to Czech Repulic at Litomerice & Melnick. Then a transfer to Prague and 2 days there. Wow!
I'd been waiting 6 weeks to see my actual Oncologist last week. It was to be very exciting because they have re-decided to find out just what sort of cancer I have. They were going to send the biopsy they'd taken back in Aug. 2008 to a fancy lab that would look at it genetically, do a "molecular analysis" and see if they could find a better direction for treatment.
The long delay was to make sure that this lab had time to get the results sent back.
I thought I'd posted a note about my Oncologist appt the next day! I haven't been on in a few weeks and I see now that there's nothing there!
WELL, there was nothing "there" for my appointment, either! I was SOOooo annoyed and frustrated! Turns out that I guess the sample biopsy from 1.5 yrs ago when I was first diagnosed was no longer good enough, not big enough, I don't know, but it wasn't useable.
Instead of letting me KNOW that, though, nothing happened and I waited 6 weeks for nothing! Someone dropped the ball. They KNOW that cancer patients are always on edge waiting for results, how could they???
Anyway, I showed up for my appointment and my doctor says,"Well, let's really find out what you have". I said WHAT??? you were supposed to do that 6 weeks ago!!! They Should have called me and scheduled a new biopsy when they found out the old one wouldn't do. ARGUUUUHHHHHH!
So I am now scheduled for a biopsy next Friday, April 3rd. I'll have Another appointment on the 9th for results. But I already know that despite the fact that they plan to (again) send it off for genetic/molecular analysis, it won't be back in one week! I'd bet $100.00 on it right now! We'll see.
Sorry to keep everyone wondering what happened! Other than that, I'm hunky dory and planning the "vacation of a lifetime" in Europe with my sister in 2 months. I'll be DARNED if the cancer people mess that one up!
The long delay was to make sure that this lab had time to get the results sent back.
I thought I'd posted a note about my Oncologist appt the next day! I haven't been on in a few weeks and I see now that there's nothing there!
WELL, there was nothing "there" for my appointment, either! I was SOOooo annoyed and frustrated! Turns out that I guess the sample biopsy from 1.5 yrs ago when I was first diagnosed was no longer good enough, not big enough, I don't know, but it wasn't useable.
Instead of letting me KNOW that, though, nothing happened and I waited 6 weeks for nothing! Someone dropped the ball. They KNOW that cancer patients are always on edge waiting for results, how could they???
Anyway, I showed up for my appointment and my doctor says,"Well, let's really find out what you have". I said WHAT??? you were supposed to do that 6 weeks ago!!! They Should have called me and scheduled a new biopsy when they found out the old one wouldn't do. ARGUUUUHHHHHH!
So I am now scheduled for a biopsy next Friday, April 3rd. I'll have Another appointment on the 9th for results. But I already know that despite the fact that they plan to (again) send it off for genetic/molecular analysis, it won't be back in one week! I'd bet $100.00 on it right now! We'll see.
Sorry to keep everyone wondering what happened! Other than that, I'm hunky dory and planning the "vacation of a lifetime" in Europe with my sister in 2 months. I'll be DARNED if the cancer people mess that one up!
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